Those stinking platelets
Oh, those stinking platelets.
My last post told you about the battle to increase my platelet count.
Not a lot of success in that area despite two shots of a drug called N-Plate, which is supposed to stimulate the body’s platelet production. The count, which needs to exceed 75,000 before I can receive my chemo treatment, was at 32,000. After a “booster,” the count was, drum roll please, 31,000.
What!
The lab doesn’t lie—unless you’re a baseball player caught with steroids in your system.
So we’re doing lab work again today (July 10). I have a hunch the number will be up, but not enough for me to get chemo.
Which brings me to another interesting story and one of the millions of reasons why health care costs in this country are spiraling out of control.
If my platelet level returns to a chemo-worthy level, I am supposed to take a drug called Fluorouracil—5FU for short. Plug in your own joke about what the FU for stands for.
5FU is a chemotherapy drug that is given as a treatment for some types of cancer, including bowel, breast, stomach, and esophagus.
One of 5FU’s side effects? It can reduce the production of platelets (which help the blood to clot). Just great!
Anyhow, here’s the deal with the 5FU. Instead of the pharmacists at Mercy Hospital being responsible for the drug’s distribution, the drug comes to my house via ground delivery in a box marked "hazardous materials.”
When I’m scheduled for chemo, I bring the drug to the oncology department, where the Mercy chemo nurses put the drug into a portable pump that I carry for 46 hours while the drug trickles into my system at what must be the slowest flow known to mankind.
Here’s the rub.
If my platelet counts aren’t high enough, the drug becomes unusable after about a week and is thrown out. I’m not sure if the drug company or my insurance company has to eat the cost, but if the numbers aren’t good today, this will mark the second time in three attempts that a dose of 5FU has been disposed without reaching its intended destination—my veins.
By the way, I mentioned steroids earlier. You should see what the steroid prednisone has done to my skin. I’m certain virtually everybody reading this blog knows somebody who has taken this drug.
It made comedian Jerry Lewis’ head blow up about as big as a Macy’s Thanksgiving Day Parade float. It’s impact on me has been just as visible.
My arms look like rotten bananas. It’s a condition you see with a lot of senior citizens. I’m covered with splotches of unwanted purple. I also have, literally, hundreds of petechia all over my torso. Petichiae are red or purple spots on the body, caused by a minor hemorrhage—usually broken capillary blood vessels.
Petechiae are completely harmless and usually disappear within a few days.
They may, however, be a sign of thrombocytopenia—low platelet counts. Each time I accidentally bump into something I create more splotches or I start bleeding like a stuck pig.
In fact, I bleed more than boxer Chuck Wepner, who inspired Sylvester Stallone to write “Rocky” and whose nickname was “The Bayonne Bleeder.”
I haven’t tried to hide my arms, which probably explains why small kids go running away in fear when they see me.
Those same arms caused a funny moment Wednesday at the movie theater in Dubuque when I took my Dad to see “Public Enemies.” (I give it three stars out of four).
I went to purchase the tickets and the seller asked if I needed two senior citizen tickets. Dad is 74 and I’m the opposite, 47. I paid for an adult ticket and a senior ticket, and then asked the teller why he thought he had two seniors buying tickets? He said he only looked at my arms and thought I was an old person.
Finally, a few post back, I wrote about National Nurses’ Day. I gave a shout out to a few nurses, but overlooked two of my first cousins, so a belated happy Nurses’ Day goes out to Cathy P. and Brenda E. Keep up the good work.
Everybody keep fighting.
We’ll see you real soon.

Aug 4, 2009 at 10:59 p.m.
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John, A similar thing happend to Tom about 8 years ago. We were in Myrtle Beach with his brother Tim. tom registered 1st at the hotel and then Tim. The desk clerk asked Tim if it was OK if he was put in the room next to his father(Tom). So all week Tim called Tom his "Dad" Its all in the eyes of the beholder!
Jul 26, 2009 at 1:02 p.m.
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John,
Glad to see you are still hanging in there and can find humor with all that has happen. Keep on plugging away. We are all thinking of you. Say high to your mom and dad for me.
B. Schiel
Jul 20, 2009 at 6:31 a.m.
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Bubs
Hope you take chemo better than you played euchre 27 years ago! Heard about your above blog from Goose & sending you best regards!
Fighting cancer is like wrestling a gorilla. You don't quit when your'e tired; you quit when the gorilla is tired.
Best personal regards & contact me.
Bob Wahlert
Corporate Manager Business Development
Hormel Foods Corporation
1 Hormel Place, Austin, MN USA 55912
Ph 1-507-434-6661 Fax 1-507-437-5108
Jul 19, 2009 at 1:51 p.m.
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Hi John, my mom just told me about your blog. I think about you and all the rowdy times we had back in the day. Boy did we drink a lot of cheap beer. And we bess not forget the yards of chili dogs. And we played a few hands of Euchre, too. And the afternoon-long games of Risk that would make Henry Kissinger look like an beginner. You must have been inspired by our "escape to Wisconsin" and so moved there permanently. Your blog is a true inspiration -- I'll be watching it and always hoping for the best. I live in NC (Chapel Hill) now but if there is anything I can do from out here, give me a holler--no worries. Take care, The Goose
Jul 13, 2009 at 11:28 a.m.
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Thanks for the article. It brings back memeories I havn't had for years. Good luck my friend.
Jul 13, 2009 at 8:39 a.m.
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John-I just completed 6 months of chemo for colon cancer. And yes, I have my own little name for the FU5. Make sure to check with your Dr. on the side effects from this, and the other chemo drugs - I have major nerve damage in my hands, feet, and legs.
Good luck, and stay strong!
Jul 12, 2009 at 11:43 a.m.
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Keep the faith John. You are a true hero.
Jul 12, 2009 at 1:22 a.m.
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Hang in there, John. I have a good feeling about your future.
Jul 11, 2009 at 10:56 a.m.
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John - thanks for continuing to make your struggle public - we can learn alot and share alot and I'm sharing thoughts & prayers with you. As for prednisone - aweful stuff and I hope you can be rid of it soon!
Jul 11, 2009 at 8:05 a.m.
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{{{Tally}}} I had to go look up her name as she is an important *person* in your life.
Jul 11, 2009 at 8 a.m.
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{{{John}}} So good to hear you still have your sense of humor and I hope your pup (sorry I forgot her name)is giving you much needed kisses and love. Keep up the fight!!!
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